Congenital heart defects are the most common birth defect, affecting 1 in 110 babies. Unfortunately, many of these defects are not detected during pregnancy or even after birth. This heartbreaking story of Taryn, a seemingly healthy baby who tragically passed away due to an undiagnosed heart defect, highlights the importance of early screening and detection.
Taryn appeared to be growing and thriving, but her life was cut short when her heart suddenly stopped functioning. Her parents were unaware of her heart defect, which could have been detected and treated had proper screening been conducted. Her story underscores a critical issue: less than 50% of congenital heart defects are diagnosed before birth.
Thankfully, a simple, inexpensive, and non-invasive screening method known as pulse oximetry can help identify these hidden heart defects. A pulse oximeter measures the oxygen levels in a baby's blood by shining a red light through the baby's toe. Low oxygen levels can prompt further medical investigation, potentially saving lives.
In 2011, New Jersey became the first state to require pulse oximetry screening as part of standard newborn tests. This law led to the diagnosis of 13 babies with potentially fatal heart defects within three years. Since then, many other states have adopted similar protocols. However, not all states mandate this life-saving test. Parents should inquire about pulse ox screening if they live in states without such legislation.
Raising awareness about congenital heart defects and advocating for routine pulse oximetry screening can prevent countless families from experiencing preventable heartbreak. With February recognized as Congenital Heart Disease Awareness Week, this is the perfect time to spread the word and save lives.